The father of 12-year-old Parth – who has a rare and deadly brain disorder – had almost given up hope to treat his son. He had spent all his savings, sold off his property and his wife’s jewellery, DD News reported.
With no option left, Parth’s father thought, “Why not write to the PM?” And to his complete surprise, he got a reply. A positive one.
Parth is from Gujarat’s Amreli district and suffers from the rare Subacute Sclerosing Panencephalitis (SSPE), a deadly brain disorder related to measles (rubeola) infection. The disease is debilitating and progressive.
“He (Parth) was diagnosed with the disease (SSPE) some four months back. I consulted all the specialists in Amreli as well as in Ahmedabad but there was no improvement in his condition,” Parth’s father told DD News.
“I sold all my property, including my wife’s jewellery, to help my only son. As a final resort, I wrote a letter to PM Modi and to the health ministry seeking help in the treatment for Parth,” he said.
A few days later, the family received a letter from the Prime Minister’s office assuring free and full treatment for the boy in All India Institute of Medical Sciences (AIIMS).
“Parth is now undergoing treatment at AIIMS after PM assured us full support and financial assistance for my son’s treatment. So now, not only do we have financial aid, the PM has also given us moral support.”
While the financial aspect of the treatment has been taken care of, it is still an uphill battle for Parth, said specialists at AIIMS, to DD News. They said his condition is very critical.
“This is a degenerative brain disease. We are providing every possible treatment to the patient. Currently, all the required tests are being done,” said Dr Sheffali Gulati of the child neurology department at AIIMS.